One month post surgery

One month out.  I’m finally feeling human again.  I guess that’s a pretty good timeline and I suppose that I’m impatient and expected to feel good and be back in action in half that time.  My new knee feels very strong and sturdy.  Yes, there is still pain, but it’s tolerable.  I took a long walk 2 days ago as part of rehab and it felt therapeutic.  I can’t wait to be back walking on a regular basis.  Abbie the jack russell can’t wait either.

The most surprising part of the surgery was how violently my RA acted up.  I really wasn’t expecting that.  I control that damn disease and it does what I tell it!! Usually.  Not so post surgery.  Of course the biologic that I am on, Xeljanz ER (or is it XR) is a daily pill.  Which means that it leaves your system each day, unlike Enbrel which stays in your system for a bit.  Once I stopped taking it prior to surgery, without any residual in my system, the RA flared.  Post surgery the RA continued to rage through my system and was the worst part of recovery.  The pain of the new knee was nothing compared to the pain of  RA.  Interesting to have a point of reference.

I have found a bit of success by upping my daily dose of prednisone, but that means I don’t sleep until 3am.  My time table is a bit off.  However, I backed down a bit this morning on the prednisone and I’m trying to return to my “normal” life.  Which is funny because my friend said to me this morning that if I became normal, she wouldn’t recognize me.  But I’m back sleeping up a flight of stairs in my bedroom, and no more riser on the toilet.  I’ve been working from home, but am going to head to the office tomorrow.  Life is waiting for me to resume.

RA flare from hell

So I know that trauma to your system can trigger an RA Flare.  A friend of mine recently had a total knee replacement and several weeks later had a painful episode of gout.  I read about that on line and told him that it was due to his surgery – it triggered the gout.

Not sure why it took me so long to look inward and recognize that the trauma of surgery was causing my flare.  I kept thinking I would be better tomorrow.  I did stop the RA meds for almost a month and have been back on them for 2 weeks, but the pain and inflammation seems to get worse every day.  Yesterday afternoon and evening I cried more than I want to admit I did.  I couldn’t get comfortable.  Sleep?  Barely a wink.  My restless legs were all over the place in bed last night.

This morning I cried again and could see how swollen the non surgical knee was.  I thought about my friend with the gout.  I thought about last summer when I was changing biologics, and took a couple prednisone tapers which honestly helped.  I’d been taking 2.5 mg of prednisone per day which is obviously not enough to beat the rheumatoid back.  My brain was thinking I should call my rheumatologist, but I don’t want to whine.  Besides, he’s going to suggest a prednisone taper.  So as much as I hated doing it, I took another dose to bring today’s daily total to 10mg.

It’s been about 3 hours and I definitely feel better already.  I have more mobility in the knee and much less pain.  Most likely I won’t sleep much again last night, but it’s a trade off I’m willing to try.  Besides, we turn the clock ahead tonite, so there’s one less hour to toss and turn.

 

 

Staples out, rehab continues

tkn

You can see the metal parts that were put into my knee 2 weeks ago during a total knee replacement.  To me, it seems pretty clean and neat.   I saw the surgeon yesterday and the staples came out of the incision.  I have to admit that the incision is very ugly but I’m told it will recede and I’ve sent Mr. phat to the pharmacy for some oil or cocoa butter to soften it and help healing.  The doctor said that my movement is very good.  I really have to work on straightening the knee.  Bending is great, but straightening it hurts.  Unfortunately the other knee is very painful of late.  Obviously overuse has worn it out.  It has no meniscus, so will need replacing at some point down the road, but I was hoping a bit later as opposed to sooner.

I have several options at this point with the non surgical knee.  I can try another injection of Synvisc, which acts as a cushioning agent.  I’ve done that two times over the past 6 years with good success.  Sadly my health insurance doesn’t cover it and it’s expensive but I will check with my pharmacist and determine the out of pocket cost.  I can also have a cortisone shot, but that’s a real bandaid and very temporary.  Lastly, I can sign up and have another replacement.  The latter option I have a lot of reasons why it’s a good idea, but the honest truth is that I wanted to be able to wait a year or two before going thru this again.  Time will tell.  We shall see how the non surgically repaired knee responds to being back on my RA meds and sleep on it and make a decision down the road.

The surgeon said to walk as much as possible.  So I’ve just done a little much needed housework to loosen up my legs and done some stretching.  He said to continue the home rehab exercises and see how I do.

Each day gets better.  I’m sure that will continue.  Thanks to all of my readers for all your support and good wishes.  It means more to me than you know.

Almost 2 weeks post op

Tomorrow will be 2 weeks post op for me.  It’s gone by quickly even though at times the minutes seem to be like hours.  Overall I’m doing well.  Progressing.  The surgically repaired knee is now my Good Knee.  My Strong Knee.  It’s stable and sturdy and feels good to walk on.  To that end, I walk mostly unaided these days.  I’ll use my cane overnight or for the first few steps in the morning, but otherwise it is not necessary.

My hurdle has been the other knee which no doubt will be replaced in the future.  Being off the RA meds since the beginning of February has caused the expected flare.  In my hands, wrists and the other knee.  The other knee formerly known as my good knee.  The pain has caused me to cry for a few moments most days.  I get overwhelmed, tired, behind on pain meds or just feel a bit sorry for myself.  I sob for a few moments and then rally.  Because that’s what RA has taught me to do.

I was supposed to stay off the RA meds until after the staples were removed, but I will confess to starting the methotrexate 4 days ago, and the Xeljanz 2 days ago.  The swelling in the new knee has diminished, my physical therapist says I’m doing great – I did climb a set of stairs yesterday and walked down the street and back up (it’s a hill).  Today is the first morning I’ve not cried since surgery.  Yes, I was stiff and sore, but the pain seems manageable and the RA flare is being extinguished.

I’ve had incredible support from Mr. Phat.  I couldn’t have gone through this without him.  He’s held my hand, cooked meals for me, and most importantly is my Iceman.  He keeps my icing mechanism full – he says I have a $4 a day ice habit and we’re not even making margueritas.  My parents drove down over the weekend for a visit which proves that you can be 55, but you’re still a daughter.  Mom needed to see for her own eyes that I was doing well.  I’ve had tremendous support from my friends and colleagues at work, which has helped me go through this challenge.  And my ski group, Team Cannon, left for the annual trip to Switzerland over the weekend.  I know that my spirit went with them.

Stay tuned for more updates.

Snow Day

Traditionally the first weekend after New Years has always been my favorite weekend to ski.  The hard core regulars are there but the casual skiers are home.  It’s not so crowded, and always an enjoyable weekend to ski.

Alas, this year that’s not to be as I wait for my surgery on a total knee replacement.  But there’s a silver lining to my cloud.  It’s a snowday and I am happier than anything to be snowbound with Mr. Phat with our brand new kitchen a little post holiday organizing and football later this afternoon.  We made breakfast together and the whole house smelled wonderful.  Later we will roast a chicken with some vegetables for dinner.  Yum.  What more could a gal want on a snowy Saturday?  Oh right, a nice cozy great room with a roaring wood stove. Life is truly good my friends, no matter what the circumstances are.  My silver lining is being in my comfy home surrounding by warmth, good smells, the man I love and our dog.

My other silver lining this week?  My eating.  This is a diet blog, right?  I did a lot of reading last week about food and the immune system.  My immune system has definitely been out of whack since summer.  Changing RA meds hasn’t helped my immune system.  Being sick and stopping my RA meds intermittently most likely has contributed to this yoyo effect.

So this week I eliminated all the inflammatory foods from my diet – dairy, grains, sugar, alcohol and legumes.  The latter is no biggie as Legumes aren’t my favorite food.  I also fasted during the day on Tuesday and Wednesday and had coffee, tea, water and bouillon during the day and salad or eggs with protein for dinner those nights.

I have already been able to cut my prednisone does in half and my goal is to be off of it shortly.  At some point in the near future for several weeks prior to my February 15 surgery date I’m going to need to be off all RA meds.  I’d like to have the inflammation as minimal as possible prior to that date.  I will keep you posted.

In the meantime, if you’re in a snow zone, relax and enjoy.

The Snowy Day

My mom was a children’s librarian when I was young.  She would host story hours and this is one of the books that I vividly remember her reading.  It was a staple at Story Hour and at home where we read about Peter exploring his neighborhood after a snowstorm.

Today was a snowy day for us since the Blizzard of 2015 came to town.    Haven’t had a snow day in a long time, but this one came along at the right time.  I’ve been feeling punk since the weekend and today when I woke up I really had no energy and felt lethargic.  I moved from my bed to the comfort of the couch next to the wood stove.  Binged watched Orange Is The New Black, watched a movie and spent a little time in the kitchen making comfort foods.  I didn’t open my work laptop, although I had planned on being productive on my snowy day.

I felt guilty at first, but then realized how fortunate I was to have my RA flare up on a day when I really didn’t have to do anything.  What a great way to spent The Snowy Day.