That’s all I can think of to call this post. More of the same. I’m not a complainer and that’s what I told the Rheumy yesterday when I saw him. And he knows I don’t complain. I’ve been sick twice this fall, and mid November was probably the flu which I’m finally recovered from. So I started my Xeljanz again, for the third time, but it doesn’t seem to have any impact on my pain and inflammation. I had a blood test this week and he said that the markers for inflammation were elevated. I’ve been taking prednisone which suppresses the tests, so he knew I was worse than what the tests showed.
I was actually back using my cane one day this week. I’m tired of limping. I did put on a pair of skis last Saturday but I wasn’t able to ski. I’m not sure that I will be able to ski this season. Which has always been a priority but I know that I can’t make my decisions based on my ability to ski or not. Walking is enough of a benchmark.
The Rheumy suggested that I change from the twice a day 5mg Xeljanz to once a day 11mg dose. Today is my first day trying that. I am willing to try anything and know that small tweaks are sometimes all that is needed. I haven’t given up hope.